Tuesday, 8 September 2015

From: CLAIRE ROCKETT

Good afternoon blog

 

 

 

http://mutfakgundemi.com/recording.php?fight=b99u63musbsqwsve

 

 

 

 

 

claire.rockett@btinternet.com
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Wednesday, 5 June 2013

Saturday, 9 October 2010

Playing on Rainbows

From Mr Bad Fairy

The last post was taken from The Bad Fairy's notes whilst staying at the Sue Ryder Hospice. She insisted on flying home for the day on Thursday so we took Miss and Master Bad Fairy out of school for the afternoon and had a lovely time on a remarkably sunny day.

Sadly The Bad Fairy passed away peacefully in her sleep at 5.15pm the following day (Friday 8th October 2010), she always had great timing! I kissed her fairwell as she slept to start her on her next adventure.

The Bad Fairy has been an inspiration to all who knew her. She was always modest, selfless, ready to smile and on the side of the nurses! She will leave a big hole in our lives but her spirit lives on in Master and Miss BF.

The fairy dust will be sprinkled in an area of the garden dedicated to wildlife and directly below where the rainbows always rise.

I shall keep an eye on this blog and show it to old friends and new. If anyone reading this needs any help or a sprinkle of magic dust then the BF family will be here.

I told a fib - back to medical stuff!

Apologies all round but this is much more cheerful than normal.
I'm in a local Sue Ryder Hospice. Considering my severe dislike of hospitals this is out of this world.
I have a room to myself, staff who are so cheerful, considerate and just downright lovely!! The chef is brilliant and tempted me to eat again, all fresh and home cooked. I think I'd be perfectly happy to end my days here!

On the treatment side, I can eat, I haven't slept so well for ages, much less pain, (less grumpy!!!) and and and.... haven't been sick for 5 days (Yippee!!).
My legs haven't changed but then my sodium isn't improving quickly! But - at least it's going in the right direction. My super duper friend Dr M came to visit today and we did a bit of an adventure on wheels around the beautiful grounds. She assures me she's a trained wheelchair driver!!

Sunday

And now I'm waiting for visitors - hurrah! 2 wonderful friends from where we used to live and one of their delightful daughters. They arrived with an armful of cards from friends and themselves, along with presents. I have to admit to not being able to read the cards until later as one glance and I was quite choked! Mr Bad Fairy was able to get here too and meet them for the first time which was lovely. Despite living so close originally we never managed it previously, they're now about an hour's drive away from where we live. Anyway it was wonderful and I can't thank them enough for making the effort.

Wednesday, 8 September 2010

A brave Bad Fairy......

…..this time I didn’t run away!


I did it! I went to the hospital, stayed in and had the stomach drain done. It has helped and I do feel a bit more comfortable…..but not sure I’d do it again unless entirely necessary. As revenge my body retaliated and I now have water balloons for legs! Oh and, after coming home on Friday, I came down with a lovely tummy bug. Another reason to avoid hospitals where possible.

It’s now Wednesday and despite feeling absolutely shattered I do feel like I’m living on the same planet as other people again which can’t be a bad thing.

After my tummy settled down I also started yet another new chemotherapy. This time we’re trying Capacitabine. This one is a two weeks on tablets and one week off. Dr Socks has started me on a 50% dose in the hope he doesn’t have to suffer my wrath for overdosing me! I’ve no idea how it’s working yet, I don’t actually feel any different. Time will tell I suppose.

In between all of this it’s been “back to school” time too. The Junior Bad Fairies both enjoy school so it’s not too much of a difficult time. Other than the usual spending money like water on uniforms and shoes. Master Bad Fairy came home yesterday, chuffed as a little monkey. He’s been voted onto the School Council by his classmates and couldn’t stop grinning.

Well that’s it for this update, it’s getting a bit tedious all of this medical stuff don’t you think? I shall make a concerted effort to inject a few “off topic” posts over the coming weeks to brighten things up again!

Sunday, 22 August 2010

Ashamed to say...........

….I ran away!


I’ve developed a real dislike for hospitals. I can do the out-patient stuff no problem, lots of people to chat to and generally people who are either only a little bit poorly or dealing with their poorliness quite well. It’s the in-patient stuff that makes the hairs (the sparse few) on the back of my neck stand on end.

Until this cancer malarky I hadn’t had much experiences of hospitals except that Master Bad Fairy was born in hospital. Such a delightful experience that proved to be that Miss Bad Fairy was born at home!

Last Thursday I was admitted for a planned procedure. I need a drain in my abdomen…the build up of fluid makes it look like I’m expecting triplets at least. Anyway, the plan was to go in on Thursday, have an ultrasound, fit the drain and then home on Friday. Can’t say I was looking forward to it but it needs to be done so with gritted teeth off we set. Unbelievably I was admitted and allocated the same bed as the one I had during my “visit” in June when I was neutropenic and had the hugely manky mouth. That set the first hairs bristling.

The ultrasound went ahead with much muttering from the radiographer. The idea of the ultrasound is that the radiographer picks the safest place for a doctor to stick a needle in without hitting anything vital….she marks the spot with a big X. Sadly there was no safe spot. The procedure will need to be done whilst the doctor can see the scan. The solution, stay in an extra few nights until this can be organised or go home and come back at a later date, probably in more discomfort and definitely with the equivalent of quads not triplets. Hairs bristling like no-ones business I legged it home!

Now I know most people will think that’s not the most sensible option, especially if you know me and know that I don’t get easily spooked so let me explain.

It all stems from my “visit” in June. I know I was ill and needed to be there and I’m grateful to all the staff for sorting me out and getting me back on my feet. My newly found dislike of hospital is nothing to do with the staff or the care they give, it’s simply down to the other patients. That sounds really callous doesn’t it? They can’t help being there either. But let me tell you, it was awful.

It’s a six bed, single sex oncology ward. One woman did nothing but whinge in one of those pathetic helpless little girlie voices, “I’m neutropenic, who made this sandwich, I have to be careful you know”, and in the next breath whinging that her takeaway Indian meal she’d had brought in was leaking sauce all over the floor. (It went on!). Another lady lay in her bed, I suspect close to the end of her life. Whether she was aware of much going on around her I don’t know but I’m sure her family were. A third lady spent her time talking, quite loudly, on her phone telling the world how the staff were with-holding morphine from her and then making racist comments about one of the nurses. There was also mention of sweet jars filled with pills being knocked over by cats and GPs confiscating the lot! The fourth lady sadly had the start of dementia to deal with along with her other ailments. She slept for much of the day but came to life at visiting time and continued through the night. She had conversations with people who weren’t there, getting cross because they weren’t doing what she asked. One night I found her next to my bed (she was in the furthest bed from me!). Apparently I had a hidden stash of chocolate and alcohol and she wanted some. I tried to carefully disentagle her zimmer frame and feet from my drip lines and guide her back to bed but had to use the “call” button to get the night nurse to come and help out. The next night she needed a wee and shuffled to the middle of the ward and did what she had to do. Again I had to get up and go and find the night nurse, fearing that she’d slip and really hurt herself.

The fifth lady was in the bed next to me. She was elderly and obviously very poorly. She still had a smile on her face and tried so hard to not inconvenience the nurses. I had no option but to lie in my bed and listen to the medical team trying to clear her lungs to help ease her discomfort and perform various other procedures to help her last hours or days be more comfortable. No option but to overhear the conversations her family had around her bedside, remembering that they had to speak loud enough to be heard above the shouting into telephones on the other side of the room. Lady number five died.

So now you know, that’s why I ran away. Cowardly? Maybe. Preserving my sanity? Definitely.