The last post was taken from The Bad Fairy's notes whilst staying at the Sue Ryder Hospice. She insisted on flying home for the day on Thursday so we took Miss and Master Bad Fairy out of school for the afternoon and had a lovely time on a remarkably sunny day.
Sadly The Bad Fairy passed away peacefully in her sleep at 5.15pm the following day (Friday 8th October 2010), she always had great timing! I kissed her fairwell as she slept to start her on her next adventure.
The Bad Fairy has been an inspiration to all who knew her. She was always modest, selfless, ready to smile and on the side of the nurses! She will leave a big hole in our lives but her spirit lives on in Master and Miss BF.
The fairy dust will be sprinkled in an area of the garden dedicated to wildlife and directly below where the rainbows always rise.
I shall keep an eye on this blog and show it to old friends and new. If anyone reading this needs any help or a sprinkle of magic dust then the BF family will be here.
Apologies all round but this is much more cheerful than normal. I'm in a local Sue Ryder Hospice. Considering my severe dislike of hospitals this is out of this world. I have a room to myself, staff who are so cheerful, considerate and just downright lovely!! The chef is brilliant and tempted me to eat again, all fresh and home cooked. I think I'd be perfectly happy to end my days here!
On the treatment side, I can eat, I haven't slept so well for ages, much less pain, (less grumpy!!!) and and and.... haven't been sick for 5 days (Yippee!!). My legs haven't changed but then my sodium isn't improving quickly! But - at least it's going in the right direction. My super duper friend Dr M came to visit today and we did a bit of an adventure on wheels around the beautiful grounds. She assures me she's a trained wheelchair driver!!
And now I'm waiting for visitors - hurrah! 2 wonderful friends from where we used to live and one of their delightful daughters. They arrived with an armful of cards from friends and themselves, along with presents. I have to admit to not being able to read the cards until later as one glance and I was quite choked! Mr Bad Fairy was able to get here too and meet them for the first time which was lovely. Despite living so close originally we never managed it previously, they're now about an hour's drive away from where we live. Anyway it was wonderful and I can't thank them enough for making the effort.
I did it! I went to the hospital, stayed in and had the stomach drain done. It has helped and I do feel a bit more comfortable…..but not sure I’d do it again unless entirely necessary. As revenge my body retaliated and I now have water balloons for legs! Oh and, after coming home on Friday, I came down with a lovely tummy bug. Another reason to avoid hospitals where possible.
It’s now Wednesday and despite feeling absolutely shattered I do feel like I’m living on the same planet as other people again which can’t be a bad thing.
After my tummy settled down I also started yet another new chemotherapy. This time we’re trying Capacitabine. This one is a two weeks on tablets and one week off. Dr Socks has started me on a 50% dose in the hope he doesn’t have to suffer my wrath for overdosing me! I’ve no idea how it’s working yet, I don’t actually feel any different. Time will tell I suppose.
In between all of this it’s been “back to school” time too. The Junior Bad Fairies both enjoy school so it’s not too much of a difficult time. Other than the usual spending money like water on uniforms and shoes. Master Bad Fairy came home yesterday, chuffed as a little monkey. He’s been voted onto the School Council by his classmates and couldn’t stop grinning.
Well that’s it for this update, it’s getting a bit tedious all of this medical stuff don’t you think? I shall make a concerted effort to inject a few “off topic” posts over the coming weeks to brighten things up again!